Sickle Cell Disease Data Collection Platform


Opportunity ID: 320900
Opportunity Number: MH-CPI-20-004
Opportunity Title: Sickle Cell Disease Data Collection Platform
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Grant
Category of Funding Activity: Health
Category Explanation:
CFDA Number(s): 93.137
Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: All except Individuals, For profit Organizations other than small business and Small Business. Addition Eligible: Private non-profit institutions of higher education; U.S. Territories
Agency Code: HHS-OPHS
Agency Name: Department of Health and Human Services
Office of the Assistant Secretary for Health
Posted Date: Sep 23, 2019
Last Updated Date: Sep 25, 2019
Estimated Synopsis Post Date: Dec 06, 2019
Fiscal Year: 2020
Award Ceiling: $1,000,000
Award Floor: $750,000
Estimated Total Program Funding: $1,000,000
Expected Number of Awards: 1
Description: The HHS Office of Minority Health is offering a funding opportunity for the design and development of a standardized clinical data collection platform for sickle cell disease (SCD) that can be shared across medical centers and other healthcare facilities. Once implemented, the platform will provide the infrastructure for analyzing data from large SCD patient cohorts, recruiting patients for clinical trials, and identifying new areas for research. This opportunity aligns with HHS Strategic Priority 4 to provide value-based care. BACKGROUND INFORMATION: SCD, estimated to affect 100,000 Americans, is the most common inherited blood disorder in the United States and is characterized by debilitating pain crises, frequent hospitalizations, and chronic end-organ damage. Clinical outcomes for individuals with SCD could be improved through increased adherence to evidence-based treatment guidelines. Standardized clinical data collection platforms have been developed for other conditions (e.g., autism, cystic fibrosis) and have been shown to improve clinical decision making, reduce cost of care, and ultimately improve clinical outcomes. Such a standardized IT platform shared across medical centers is not currently available for SCD and is expected to be an effective tool to improve health outcomes for the SCD population.
Version: 2
Modification Comments: correction to Eligibility

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